Thankfully after the scan yesterday talked about in 4 years, I was back at the hospital for the weekly checks and to get the N-plate subcut and most likely talk about the clot and get a plan of action in place on what can be done to help get rid of it.
The usual going in getting bloods taken and discussing with the nurse about different things and issues that had come about over the week, then waiting around for an hour for the results to return.
It seemed to be much busier than normal on a Wednesday, not quite sure why but didn't really affect things for me as I'm there first thing.
Got called in to see the doctor and we were discussing various things and said to him the pain in my leg had subsided a bit and I expected the counts to be fairly low as it's normally not as bad when they are...
Well... They were not just through the roof they were floating around the far side of Jupiter, they were 503!! The doctor said this could be due to the inflammation in my leg and that it can cause the platelets to increase although it's hard to take the result as a truly accurate one. The N-plate was reduced last week and no real reason for them to increase by near 400. So the N-plate was reduced again this week.
Then on to the clot... I was expecting the drugs to take this into account so I was surprised he spoke about reducing them before talking about this. He believed that something desperately needed done about it and has given me a blood thinning drug, which for someone with ITP should not be taking, I'm not even allowed to take aspirin.
So I am now on drugs to increase the platelets so my blood DOES clot and another frog to STOP my blood from clotting...
But as said something had to be done to help clear this. The thinner is called fondaparinux and is supposed to be just a preventative dosage and hence his willingness to reduce the N-plate. If it was a higher dose of the thinner he would have kept the things the same, but having a platelet count of 500 odd is also not very good and needs to be lowered.
Once done with the doctor I went back to wait for a bit more before getting the N-plate, finally got that and headed off to work.
I had to return later to pick up the fondaparinux and be shown how to use it, it's a subcut, the same as the N-plate, which I would give myself most weeks anyway, thankfully this new one is prepared so I don't have to mix it up each time and just inject it. Seems straight forward enough although the needle isn't as sharp as the one with the N-plate so struggled a bit to get it through the skin, needs more of a sharp push. I was given 40 days supply of this and was told I'd be on it for at least the 40 days I'm guessing it could be a fair few months with how big a clot it is and from what I've read it'll be 3-6 months.
So... Now.... *Shrugs* I've no idea what to expect, interesting times... And hopefully it works and things start to settle.