So now it is Wednesday, I have had my steroids increased, a bag of platelets and the one dose of IVIG... bloods were taken first thing this morning which is the first thing I haven't had to ask about! A good start to the day eh? Well then the doctor came and said about a bit of a plan; more IVIG today and that the platelets were now up to 51! Woohoo up!! I was expecting it to be that by Monday if things had went to plan, not 2 days later, anyway, I said to him about the rash and as soon as he had a look at it he said it was shingles and that I'd be put on antibiotics and possibly moved to my own room. Not surprised in the slightest we were right and the two doctors didn't have a clue what they were looking at.
So after a while they were getting the new room all organised for me, initially they had said about going to 6 North but they thought it would be a better idea if I was just to be moved to one of the side rooms in the ward I was in 2A, me possibly thinking they might be able to show themselves in a better light. I was moved about 1ish and had some visitors and later when I was getting some antibiotics I asked about the IVIG.... they went to check...
On their return I was given the piriton and the cannula flushed to make sure it was working as it should and shortly after a doctor arrived, I thought initially he was just double checking things but turns out he was ordering it.... ordering the drug after 5pm on the day I'm supposed to be getting it. I am lost for words on the incompetence of the staff here, astounded, never experienced anything like this in all the years I've been coming to hospital.
The doctor returned put on a gown and gloves since I'm now contagious and sat down and apologized for what had happened and that it was completely his fault, the drugs wouldn't arrive until at least 9 that evening and they were not willing to give it to me with not having as many doctors or nurses around. I said that I was confident enough that I would be able to take it with no real issues and that it's just whether the nurses have enough experience to be able to administer it, but from what I've seen they don't and from what he was saying neither did he and so I said it's up to him to decide if he is thinks they are competent enough to do so. He continued to say about just getting it tomorrow first thing in the morning and that it is completely his fault that I did get it today.
Basically another day wasted sitting here waiting for a bus that never came, it's been incredibly frustrating and I was hoping after my first moan that they might have put a bit more effort in to making sure things were done, but it certainly doesn't seem as if that is the case.
Minus all the screw ups I am mostly feeling ok I felt fine with the low platelet count and just with the itchiness and pain of the rash things have got a bit worse but nothing I can't handle, struggling to not scratch my head and poke at it but doing surprisingly well.
Tomorrow is a new day and I hope that I get the IVIG and counts done asap and maybe get the doctors and nurses communicating with each other so we all know whats going on and are on the same page rather than me having to chase everything!!!
Please make tomorrow a better day.
Although on a positive I now have my own room my own big TV and my laptop to do stuff on rather than just my phone, which does most of what I really need anyway but nicer to have the bigger screens and keyboard.